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| Library > AirmanFamilyReadiness > Family > SpecialNeeds |
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Check out these helpful resources for children and spouses with special needs. You may be a parent struggling with how to help your child with behavioral issues or need help with understanding how an IEP works. Check out these resources as a good place to start!
| KNOW YOUR RIGHTS |
· What funding sources are available for my child with cerebral palsy and my family?
· What is our state's Medicaid policy, and how can I find out if my child is eligible?
· What services are available in our state for respite care, and how do I apply to receive respite care?
· Where can I get legal assistance?
Resources
Councils on Developmental Disabilities
National Disability Rights Network |
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Meet another family with a child who shares a similar diagnosis:
FIND SUPPORT
Emotional & Informational support for families of children who have special needs. Find a program near you! |
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| SOCIAL SECURITY INFORMATION |
What is SSI?
- Income assistance program to meet basic needs for food, clothing, and shelter.
- Monthly cash benefit is $674 per month for an individual and $1,011 per month for an eligible couple, effective January, 2009.
- Same core national amount; some states supplement.
- Social Security office in your state can tell you your state's amount of funding.
Age
- Children birth to 18 with disabilities
- Adults 18 years or older with disabilities
- 65 and older without disabilities
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| SOCIAL SECURITY DISABILITY |
For children: http://www.ssa.gov/applyfordisability/child.htm
Understanding Social Security Income http://www.ssa.gov/ssi/text-understanding-ssi.htm |
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| ADDITIONAL RESOURCES |
Resources from National Organization for Rare Disorders (NORD):
Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) - 1 800 716 7638
March of Dimes Foundation - 1 888 663 4673
Chromosome Disorder Outreach - 561 395 4252
National Association for Down syndrome
National Down Syndrome Society - 1 800 221 4602
National Down Syndrome Congress |
| Autism Society |
| Children and Adults with Attention Deficit Hyperactivity Disorder |
Bipolar Disorder
Knowing more about the causes, symptoms, and treatments of bipolar disorder can help you understand this complex mental disorder. |
TheArc
Supports and services offered by their chapters include:
· Information and referral services;
· Individual advocacy to address education, employment, health care and other concerns;
· Self-advocacy initiatives;
· Residential support;
· Family support;
· Employment programs; and
· Leisure and recreational programs
Find your local chapter for assistance! |
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| GOVERNMENT RESOURCES |
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GovBenefits.gov
Your Benefits Connection |
| US Dept of Education |
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US Department of Education Links for Special Needs |
| Find a list of names and contact information for all of the disability resources in your state. Learn what research says about the most effective ways to teach your child. Find the latest publications of the U.S. Department of Education. |
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National Dissemination Center for Children with Disabilities (NICHY)
A central source of information on disabilities in infants, toddlers, children, and youth. Here, you'll also find easy-to-read information on IDEA, the law authorizing early intervention services and special education. Our State Resource Sheets will help you connect with the disability agencies and organizations in your state. |
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The Family Center on Technology and Disability (FCTD)
A resource designed to support organizations and programs that work with families of children and youth with disabilities. We offer a range of information and services on the subject of assistive and instructional technologies. |
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| PRIVATE / NON-PROFIT RESOURCES |
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TA Alliance
Parent Training & Information Center (PTAC) - The ALLIANCE National PTAC collaborates with the six Regional Parent Technical Assistance Centers (RPTACs) in New Jersey, North Carolina, Texas, Wisconsin, Colorado and California to increase Parent Centers' capacity to serve families of children with disabilities. |
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The ALLIANCE National Parent Technical Assistance Center has published over twenty-five handouts on relevant issues such as assistive technology, the special education process, and focused monitoring. |
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STOMP (Specialized Training of Military Parents) is federally funded and was established to assist military families who have children with special education or health needs. STOMP began in 1985, it is a project of Washington PAVE, and is funded through a grant from the U.S. Department of Education. |
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MUMS
MUMS is a National Parent to Parent Network whose mission is to help parents who have a child with any disorder, medical condition, mental or emotional disorder or rare diagnosis make connections with other parents whose children have the same or similar condition. |
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Family Voices
Experienced families listen and answer new families' questions about a new diagnosis, help them find an accommodating dentist, or assist in negotiations with insurance companies. They help other families address language and racial barriers, enroll a child in the neighborhood school, improve hospital policies, explain complicated Medicaid rules, and advocate for better preschools. Family Voices has become a national clearinghouse of information and support. |
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| MEDICAID |
What is Medicaid?
· Federal/state funded health care and long-term care program.
· Focuses on people with low incomes and special populations - people with disabilities, children, people who are elderly.
· State Medicaid agency determines specific plan, eligibility rules, and services.
· Small co-payment is sometimes required.
There are 3 types of Medicaid programs
· Children's Health Insurance Program (CHIP/SCHIP)
· Institutional Long-Term Care
· Home and Community Based Services (HCBS) Waivers
Medicaid Helps:
· Children
· Pregnant Women
· Adults in Families with Dependent Children
· Individuals with Disabilities
· Individuals 65 or Over
For more information:
· Contact your local branch of federal Department of Health and Human Services.
· Look on government pages of your local phonebook or white pages under "city of..." or "state of..."
· Locate your local Medicaid office at National Association of State Medicaid Directors. |
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